Sleep Without Thinking

Thank you for this touching video. Please do take a look at the specialised chronic fatigue syndrome videos on our channel

WTF!!!

Fantastic video, very touching.

10/10

Thank you, this video shows the truth of what i and many other people have to go through every day. I do not have it that bad but some times my headaches used to have me screaming in pain, now i have to scream inside, to stop my familys scorn. They don’t understand.

Thank you, this video shows the truth of what i and many other people have to go through every day. I do not have it that bad but some times my headaches used to have me screaming in pain, now i have to scream inside, to stop my familys scorn. They don’t understand.

Two years later I feel it is still a huge struggle. I live alone with my 14 years old son, and I use all of my energy to take care of him. I would like my son to have an as normal familysituation as his friends. I kind of search for a balance in life…where I can contribute at my level, or a bit above that step – and at the same time be a successfull mother:))

Anyone who has been diagnosed with CFS should suspect Lyme Disease, and see a lyme disease specialist, get a western blot test or better, and/or be clinically monitored. A lot of your pain, (maybe not all,) can subside with long-term antibiotic treatment.

It really pisses me off when people say “yeh, i think i have that”…..try having it for as long as i have, and then say it mate. Doctors always want to do tests on me and come back saying the same thing….I am currently trying a product called Kakadu juice…I shall keep you informed on how it has or hasn’t helped me…I can only say it is like living with a schizophrenic body….you never know how your body will feel every day.

I cried to see this video…I am an Aussie and have had CFS for the past 17 years….I lost my career as a telecommunications technicians and my modelling career to this dreaded bloody thing. I did choose to have children though, and it is bloody tough, i can tell you especially as i have a one year old at the moment..My partner still doesn’t have a true understanding of it after 15 years together..Now we live apart because i am so fed up of not being heard.

Yeah that sort of thing always pissed me off too…

I have begun telling people that I have “Chronic Neuroendocrinimmunologic Disorder Syndrome.” They never sayl, “I think I have that, too!” or “I think I have a touch of that” as they did when I called my illness “Chronic Fatigue Syndrome.”

This is the Best! please change the number..it is now over four million in the USA alone…you are a talented film maker!
I posted this to FB.

Watching this video has brought tears to my eyes. Knowing that others know exactly what I feel, in a world of people who dont understand whats wrong with me. My heart breaks for those of you dealing with CFS, my prayers are with you always.

Walmart has a 9×7 dome shaped tent for $37 it’s made of nylon (low voc), don’t need stakes, the poles will support if you set it up in your bedroom. Put a hepa filter in it and don’t come out without a respirator made for mold abatement $35 home depot. Do this for2weeks, I strongly believe many will see a huge drop in symptoms. if only everyone who suffered were on the same page with their symptoms and the cause the pressure would be too great for authorities to write it off as psychological

This is beautifully done. Thanks for putting this out there. Best wishes for you and your health.

Yeah I always say I have an auto-immune associated disorder and suffer from chronic fatigue. (I’m not officially diagnosed, they most likely say its Undifferenciated Mixed Connective Tissue Disorder) Most people don’t understand that chronic fatigue syndrome is a serious multi-system illness that is more than being, “tired,” or “lazy”, or depressed (and not trivializing depression what so ever). But they can’t change the name unless they find one that what its actually caused by.

no, they’d just deny that they died of this illness like they already do. a woman who lives about an hour away from me died of ME about a month ago. she had it post-ebv infection if I recall.

calling someone with ME a “cfs” patient is like calling a black person a nigger. its a demeaning term that has significantly impacted alot of our lives, compounding the problems we already suffer. As the term has resulted in widespread emotional suffering amoungst the patient group its a term that really should be ditched or deamed derogatory.

We would not need to change the name if it were to be more understood by the masses. I do agree though that the name is terrible. Fatigue is more of a result of what is happening in the body, not the culprit!

That is why we must continue to honestly raise sincere awareness. I have begun a video series about my CFS experiences and I encourage others to do the same… I wish love and health to us all!

Dr Franky Dolan

If more people die of this illness, or complicationns of, then would the name change. ? Well spoken, My heart goes with you all who suffer.

Grnygnbad

Excellent. Beautifully done. Thank you for using devices available to you to help people understand this confusing, frustrating illness.

Personally, both names don’t make much sense. The term M.E. stands for medical terms that distinguish something wrong with your brain or spine. CFS also trivializes the illness.

CFIDS is a bit more acceptable of a name because it brings to the table the idea of immunodeficiency or Post Viral Fatigue.

love your video

My specialist is on the committee to change the name! For sure any title with “fatigue” in it trivializes the seriousness of the illness. Nothing bothers me more than when I’m discussing my illness with acquaintances and hear things like “I’m tired every morning when I wake up! Maybe I have it!”

Thank you, it was beautifully done.